Taking the mystery out of patient and public involvement/engagement in (PPIE) data-intensive health research

Time: 09:30 - 15:00

Venue: Innovation Suite, Innovation Centre, Grafton Street, University of Manchester

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Meaningful patient and public involvement work relies on partnerships between University staff and public contributors working collaboratively to develop research and teaching.

Traditionally research using large datasets has not involved patients and the public as this can be challenging.  This session aims to provide a safe and supportive environment in which those working in data-intensive health research, in any role, can learn about PPIE and how to incorporate it into their research. We will discuss the challenges and work together to develop ways in which to involve patients and the public in data-intensive research.

Who is the workshop aimed at?

  • Researchers who work in data-intensive health research with limited experience of patient and public involvement
  • Members of patient and public involvement groups based at the University of Manchester

Format:  We will explore the ways in which patients and the public can be involved in research involving large datasets and the challenges that may arise from this.  We will use scenarios that are based on experience to explore these issues. We will also provide a short PPIE clinic with researchers and pubic contributors who will be able to provide individual PPIE support and advice with specific research projects/proposals. 

Agenda:

09:30  Registration and Coffee

10:00   Welcome

10:10   PPIE in data-intensive health research

10:40   Methods of PPIE

11:00   Coffee

11:15   Activity - Who should/could you engage with? And how will you identify and select those people?

11:45   Activity group feedback and discussion

12:15   Lunch

13:15   PPIE Demo: Patient, data, action!

14:40  Summary and next steps

15:00  Close


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