Balancing the local and the universal in maintaining ethical access to a genomics biobank.
Venue: Room 2.07, Humanities Bridgeford Street, The University of Manchester
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Speaker: Cate Heeney, University of Edinburgh
Data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for governance and practices such as linkage to health records, and the global through policies for biobanking and the sharing of data with large-scale biomedical research data resources and consortia.